Being diagnosed with an incurable chronic illness plunged me into a grief spiral, triggering an early mid-life crisis. Why, you ask? Living with a chronic illness involves navigating numerous emotional challenges. A significant part of my identity was intertwined with activities such as camping, hiking, and long-distance walking. I was an avid outdoorsy and active person. Gradually, I encountered issues that rendered these activities difficult, or in some cases, impossible. This propelled me into an identity crisis as I mourned the life I once had and the life that could have been.
It took time for me to rediscover myself amidst these illnesses (I have more than one) and to embrace the person I was becoming. I explored new activities that brought me joy. For those supporting someone going through a similar experience, patience is key. It took me a few years, and now I find myself contemplating what I can do with the right tools. I am embracing the use of a wheelchair to tour a museum, and I am considering getting a walker with a seat to enhance my independence and push my limits during walks. I am also learning to understand my limits and the time it takes to recover. Despite these strides, I still grapple with flare-ups, struggling to predict or identify all my triggers.
Confidently, I believe that with time, I will gain a better understanding of my chronic illnesses. My one wish is that doctors recognize how chronic illnesses profoundly alter a person’s life. In my experience, there seems to be an emphasis on pain acceptance, at least in my area. I also feel that my doctors may not fully grasp the impact on my life and relationships. It is my hope that healthcare professionals gain a more comprehensive understanding of the holistic effects of chronic illnesses.
The pain is real! 
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